Open in App
  • Local
  • U.S.
  • Election
  • Politics
  • Crime
  • Sports
  • Lifestyle
  • Education
  • Real Estate
  • Newsletter
  • Axios Boston

    Seaport pharma firm launches world's most expensive medicine

    By Mike Deehan,

    2024-03-21

    A new gene therapy drug from a Boston-based company to treat a rare genetic disorder comes with a whopping price tag: $4.25 million.

    Why it matters: The drug, known as Lenmeldy, is now the most expensive medicine in the world.


    • The Seaport's Orchard Therapeutics won approval for Lenmeldy Monday.

    Around 40 children are born with the genetic disorder treated by Lenmeldy — metachromatic leukodystrophy — in the U.S. each year, according to CNN.

    • Makers of the new drug claim it can slow or even stop the progression of MLD with a single dose.

    The bottom line: Instead of charging patients over $4 million, the price is what insurers, including public payers like Medicaid, will have to pay for the treatment.

    Get more local stories in your inbox with Axios Boston.

    Expand All
    Comments / 0
    Add a Comment
    YOU MAY ALSO LIKE
    Local Boston, MA newsLocal Boston, MA
    Most Popular newsMost Popular

    Comments / 0