The seven stages of adjustment to vision loss closely mirror the stages of grief that people often describe for dealing with the loss of a loved one.
Losing your vision can be a frightening experience that can stir up many emotions. Whether it occurs due to a sudden injury or a degenerative condition, it’s normal to feel worried about how your life might change in the future.
Dean and Naomi Tuttle described seven stages of adjusting to vision loss in their 2004 book “Self-Esteem and Adjusting with Blindness: The Process of Responding to Life’s Demands.”
The seven stages they described closely mirror the five Kubler-Ross stages of grief that people often describe for dealing with the loss of a loved one.
Read on to learn more about these seven stages of adjusting to vision loss.
Stage 1: Trauma
It’s normal for someone to feel frightened and overwhelmed when they first realize that they may have lost their vision, especially if it’s unexpected. They might have racing thoughts about how their life will be different in the future and feel extremely stressed or anxious.
Caregivers during this period can offer support by listening to the person and supporting their physical and emotional needs. The person may need honesty and frank discussions about their condition and a gentle approach to support them through this period.
Stage 2: Shock and denial
During the second stage, many people become depersonalized or mentally numb to the situation since they may have trouble believing what’s happening. They may be unable to fully process the changes to their vision and deny that it’s real.
People often avoid seeking medical attention right away since it can be easier to remain in a state of denial than it is to face the reality that their vision may change forever. Some people may also partake in activities that can be dangerous with vision loss, such as driving.
Caregivers may support people in this stage by providing:
- space
- time to process
- honest support
It’s generally best to avoid being overly pushy during this stage to give the person the space they need to process what’s happening. Many people in this stage don’t feel ready to seek help.
Stage 3: Mourning and withdrawal
Once the initial shock wears off, many people withdraw from their usual activities and spend more time alone as they enter a period of mourning.
Loss of vision may also make activities like driving difficult or impossible, which may further worsen their withdrawal and feelings of isolation.
People in this stage may experience feelings of:
- sadness
- self-pity
- bitterness
- helplessness
- frustration
- despair
It’s also normal for some people to have angry outbursts or to pull away emotionally.
People in this stage may benefit from speaking with somebody who’s been in a similar situation or taking part in activities they enjoy to try to take their mind off their vision loss.
Stage 4: Succumbing and depression
Stage 4 is characterized by succumbing to feelings of hopelessness and helplessness. The person may not want to do anything and may stop taking care of themselves.
They might also experience:
- depression
- loneliness
- boredom
- hostility
- anger
- frustration
Support groups can be helpful for people in stage 4, as can engaging with social contacts and activities outside of the home. The person might need listening, reassurance, and a realistic perspective from trusted sources.
Stage 5: Reassessment and reaffirmation
Stage 5 marks the turning point for regaining a more positive outlook. In this stage, people generally start believing that they can regain and control their lives. They might have a “ life is still worth living ” mindset. A major turning point is when the person realizes they’re still the same person they were before their vision loss.
The person may start discovering new ways to perform activities that they enjoy. But they may still try to perform activities like they did before without adjusting to their new vision.
The person may benefit from participating in support networks or activities during this stage.
Stage 6: Coping and mobilization
Coping and mobilization occur when the person develops the coping skills and techniques they need to live with their eye condition. They may learn how to do daily tasks in a new way, but many people continue to feel self-conscious in public .
Caregivers and loved ones may wish to participate in new activities with the person during this stage.
Stage 7: Self-acceptance and self-esteem
The last stage involves the person realizing that they’re somebody of value and that having an eye condition is just one of the attributes that makes them who they are. During this stage, many people feel ready to build new relationships or rebuild old ones.
People in stage 7 may alternate between positive and negative emotions that come and go but overall experience emotional stability. They can enjoy and participate in recreational activities, and they may have the confidence to use tools and strategies without feeling self-conscious most of the time.
Resources and support groups
Many resources and support groups are available to help people with vision loss. Here are some resources that you or your loved ones may find helpful:
Learn more about vision loss resources.
Tips for loved ones and caregivers
- Avoid being too protective.
- Offer to help the person take their oral medications or eye drops.
- Encourage them to be self-reliant.
- Listen when they need to talk.
- Work on solutions for problems together.
- Treat them like you would other people.
- Ask them before assuming that they want you to do something for them.
- Match their speed when walking.
- Let them know if you see obstacles in their way.
- Be specific when describing things with language.
- Don’t pet guide dogs without permission.
Takeaway
Dealing with vision loss can be very difficult. It’s normal to feel a range of emotions, like sadness, anger, or regret.
Many people find joining support groups helpful for dealing with their vision loss. You may be able to find support groups in your area by asking your eye doctor or searching online.
Most Popular
Comments / 0