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  • Faribault Daily News

    Faribault family finds hope, community after daughter's rare diagnosis

    By By COLTON KEMP,

    1 days ago

    Winding up Chris Delesha’s arm is a tattoo of a chemical structure — meaningless to most, but one that changed his family’s life forever.

    https://img.particlenews.com/image.php?url=48nLmI_0vzITEUs00
    Vivian Delesha, 6, smiles with her wall of art Friday at her house in Faribault. The powder in her daily supplement for tyrosine coats her teeth and eats away at the enamel, but the gap in the front is just a lost baby tooth. (Colton Kemp/southernminn.com)
    https://img.particlenews.com/image.php?url=4AOKBq_0vzITEUs00
    Vivian Delesha, 6, rides a horse back in September during the 2024 NOTA Experience at the Rocking Horse Ranch in New York. (Photo courtesy of Chris Delesha)
    https://img.particlenews.com/image.php?url=3XLtK2_0vzITEUs00
    Vivian Delesha, 6, slurps up some spaghetti made specially for those with tyrosinemia early Friday evening at her home in Faribault. (Colton Kemp/southernminn.com)
    https://img.particlenews.com/image.php?url=0D2s28_0vzITEUs00
    Chris Delesha, of Faribault, whips up some special marinara sauce and spaghetti noodles early Friday evening for 6-year-old Vivian Delesha, who was diagnosed with tyrosinemia type 1 shortly after she was born. The rare genetic disorder disrupts the metabolism of the amino acid tyrosine, and Vivian is unable to eat food with protein because of it. (Colton Kemp/southernminn.com)
    https://img.particlenews.com/image.php?url=4ZQfJ8_0vzITEUs00
    Vivian Delesha, 6, climbs a rock wall during the 2024 NOTA Experience at Rocking Horse Ranch in New York in September. (Photo courtesy of Chris Delesha)
    https://img.particlenews.com/image.php?url=3kyz8b_0vzITEUs00
    All seven packets of powdery protein supplement is mixed into a bottle of water that 6-year-old Vivian Delesha has to drink every day to help supplement the protein she’s unable to metabolize due to her condition. She also has to take the two pills seen here Friday at her house in Faribault. (Colton Kemp/southernminn.com)

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