Race to Fight Sickle Cell Disease: Great turnout for New Orleans’ Sickle Cell Red Run

NEW ORLEANS ( WGNO ) — September is Sickle Cell Awareness Month. It’s a disease that is not often thought about, but it affects many lives each year.

It’s one Rachelle Defillo doesn’t take likely, as her son was diagnosed with sickle cell as a child. For the last few years, she has hosted the Sickle Cell Red Run in honor of those fighting and supporting those with the disease. She says it is more than just a run.

“What this says is the awareness is big, and the commitment to the sickle cell community is here. It is a level of excitement and togetherness, and we want to make sure we are fulfilling the needs of the sickle cell community. So, awareness is big,” said Rachelle Defillo.

For 32-year-old Darrin Defillo, it’s been a long journey but a special one dealing with sickle cell. Through the ups and downs, he believes it helped him find himself.

“It makes me live under a scope to make sure I live as healthy as possible, be as good to people as possible, and not be stressed. So, it’s a journey that I don’t regret,” said Darrin Defillo.

Wanting those who may get diagnosed to not think about it as a negative thing, but to never stop living. Adding to be sure you have people around that care about you and your health.

“Don’t take them for granted, they are there to help you. Take care of yourself, drink a lot of water and take your meds as necessary. Don’t give up. There is so much life to live. Don’t let anyone tell you there isn’t life to live. You can live for a very long time,” said Darrin Defillo.

With the help of early detection and new treatments, it can reduce the risk of life-threatening complications. Rachelle Defillo believes as the awareness about sickle cell continues to grow, people need to keep up with their health.

“Thanks to the Sickle Cell Commission, the medical community, and the advocates that are making it happen so they can have the care that they need. But as a patient, the first line of defense is going to the hospital. You have to go there to make sure you are cared for,” said Rachelle Defillo.

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